Emily in her TEAM EMILY shirt for the Diabetes Walk

Monday, April 26, 2010

Emily's TV Debut...

Yes, Emily had her first television interview today (of course, it was me who did most of the talking). The Walk for Diabetes in Tupelo, MS is coming up this Saturday, and Emily and I were invited onto our local TV station's 12:00 news to help promote the walk. It was a lot of fun, and a very sweet memory that I will share with my little Emily. She was sooo cute! She took the whole show, of course, when she decided that she did not want her pacifier anymore, and literally chunked it across the stage. lol! Everybody just thought that was the cutest thing. I haven't watched it yet. Had my DVR set, but I am holding off to watch it for a little while. hehe Have a great week!

Saturday, April 17, 2010

Surgery went well...

Thankfully, the adenoidectomy went well. It was a very loooong morning, though. We got up early Wednesday morning, arrived at the surgery center around 7:30. She wasn't allowed to eat anything all morning, so that was a concern right there because of her Diabetes. First thing, we checked her sugar, and it was low. So we got that fixed, and then waited until they were ready to do the surgery. I can't even tell you how nervous I was. This was a simple procedure, but I couldn't help but be worried I guess. It didn't take them very long to get it done and let us know that she had done very well, and that her adenoids had been very big and really had needed taken out. We stayed there for a little while longer that afternoon until she was able to drink well, then came home. This is where the problems started...
We were told to feed her soft foods for two weeks after the surgery. So, finding things that she could eat was one thing, then getting her to eat them was another. Her sugars were completely out of control...one minute it would be low, and the next, high. I've never seen her sugar do the things that it has done over the last couple of days. She threw up a couple of times, which was expected. I just felt so sorry for her. Today, however, she seems to be getting back to her old self. She's playing, her sugars have actually been normal all day, she's starting to eat better, and I can tell a definate difference in her breathing. It's so nice not to have to listen to her struggling to breathe and snorting all the time. I hope this will take care of the chronic sinus infections, as well.
Anyway, there's the update. Hope everyone has a great weekend!

Monday, April 12, 2010

Hello "Getting into everything!!!"...Goodbye adanoids...

I know it has been so long since I have gotten on here and wrote anything. Let me tell you...it has just been super busy. The Walk for Diabetes is coming up, and for some reason, it just seems to take up a lot of my time fundraising and getting our team together. So far, we have over fourty walkers on our team, and I personally have raised over a thousand dollars for the Diabetes Foundation of MS. This is such a good organization. They helped us out so much when we came home with Emily after she was diagnosed with Diabetes. I love doing this.
First of all, let's talk about Hello "Getting into everything!!". Emily has started cruising...EVERYWHERE! It's so cute! There's not anywhere in this house that she won't go as long as she has something to hold on to. It's precious watching her walk around stuff. I'm still waiting on the day that she just takes off on here own, and I really do believe it will be soon :) Since she has started cruising everywhere, she has been getting into everything, as well. She's standing up at the kitchen sink putting stuff in it...I will try to get a snapshot of this sometime if I can get it quick enough...she's pushing buttons on our stereo system, and well she's just EVERYWHERE! I get tickled at myself sometimes because I know that if my other two kids had done some of the stuff that she does, I wouldn't have laughed, but with her...I don't know. It's almost like I'm just so happy that she is doing it that I can't help but smile and laugh at her! We were at church yesterday morning, and she has gotten to where she will stand up and hold on to the bench in front of us while we are singing. Then yesterday, she just let go and stood there on her own and clapped! It was soooo precious! I just smiled! I know everybody had to be wondering what I was smiling so big for. My husband even saw it from the drumset and asked me what she did...lol He knew it had to be her that provoked a smile like that of pure and utter joy!
Ok...now to "Goodbye adanoids"...this Wednesday, Emily will have her adanoids taken out. I'm hoping this will help her with all these sinus infections that she has been having. The doctor agreed that something needed to be done, so...we scheduled it as quickly as possible. She has had tubes done before, but this surgery is a little more of a big deal, especially with the Diabetes, because she won't be able to eat anything all morning long. This concerns me, but I have been assured that they will take every precaution necessary to make sure that she is ok. I know it's gonna be a very nerve racking morning. It's not that I don't trust them, but I sure would like to be able to see her a whole lot sooner than I will be able to. I won't be able to see her at all while she is in recovery. I'm attached to my little Emily, but...sometimes we have to do things that are a little uncomforatable to get the results that we want for the long run. I'll update on how everything went. Hope everyone has a good week.

Thursday, April 1, 2010

Round and round we go!...

These last few weeks have been such a whirlwind! It seems like there is always something that needs to be done! This week alone, Emily had two doctor visits. One was in Memphis, a couple of hours away, and the other was supposed to be yesterday, but got cancelled...a whole other story. The visit in Memphis was her Cardiologist. Everything was fine, thank goodness. He could still hear the heart murmer, but he said that it still wasn't big enough to cause any real problems. We don't have to go back to visit him for 2 years! Yay!! The visit that was supposed to be yesterday was with the Orthopedic doctor that I mentioned in my last post. It got cancelled yesterday moring due to the doctor having a medical emergency with his Father. Thankfully, they are going to reschedule another clinic day in Tupelo, and we still will not have to drive to Louisiana. I was really hoping to get that doctor visit over with now because I really think she needs to see this particular doctor and because her Medicaid doctor visits will be all taken up by the time we get to reschedule. I can deal with this pretty easily (with a little bit of arguing a little with the insurance people) in our area, but I am quite worried about not having any visits coming into this one because the doctor is from Louisiana. We have to deal with running out of doctor visits EVERY YEAR because she has to see so many doctors and there's just not enough visits to cover everything. I tried to be as proactive as I could this year by trying to get in the required paperwork from each doctor that she sees to get more visits, but I wasn't planning on seeing a new doctor. So, now, I have to worry about that and what I need to do about it. I guess I probably just need to get on the phone and call somebody to see what I need to do. I just get so tired of doing this stuff sometimes...I think this is where most of my stress comes from. It's not just from the Diabetes or the Downs Syndrome...it's having to deal with all the doctors and therapists and Medicaid and pharmacies!!
So, on to another issue...the Walk for Diabetes. This is always a pretty stressful time trying to get everything together, get all my fundraisers together, and find walkers. Well, this year it has just been a battle from the beginning. For one, my top fundraiser from last year that raised over a thousand dollars just decided that she didn't want to help this time. Just because she didn't want to! It wouldn't be so bad, but she promised me that she would help, so I was depending on that. On top of having to do pretty much all of the fundraising by myself, I am having to figure out how to actually do fundraisers. Last year we did all of them at our church, but we have another big church fundraiser going on now, so the walk fundraisers are pretty much having to be done outside. This means I have to get people to volunteer to help man the tables for the bake sales that we are having and get people to bake stuff and get it to me before the bake sale. I know this doesn't seem to be such a big deal, however, I am also having to deal with the added pressure that I am actually helping the Diabetes Foundation of Mississippi promote this particular walk. They were so impressed with us when we went in November that they wanted me to help, and I was sooo happy to do this because this is my passion now. However, I feel like I need to raise a lot of money and bring a lot of people to the walk because if I am promoting it, then I should show up with as much money and as many people as possible. Am I rambling? I think I am just because I need to get all this stuff off my chest. It's just been a stressful few weeks. I'm hoping things are getting close to slowing down a little. We're getting closer to May 11 when Emily will hopefully be going on an insulin pump, and I am so ready for that. Life, I believe, will be a little closer to normal with her using that, and man could we use a little normalcy.
I hope everyone has a great weekend! I have a friend of mine and her little boy coming over to visit tomorrow (kind of like a playdate). I'm sure Brooklyn will love having a kid her age to play with around the house. Other than that, it will just be a normal weekend. Hopefully getting some rest!